Childhood Tumour Trust

UK charity·childhoodtumourtrust.org.uk

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Its conditions

Neurofibromatosis (NF1 and NF2)5

Less urgent or different from the NHS

How often should women with NF1 have a mammogram and from what age? Said “recommend starting at age 30”. The NHS says women with NF1 should have a mammogram every year from age 40.

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Neurofibromatosis (NF1 and NF2)

How often should my child with NF1 have their eyes checked? Said “Every 2 years after they reach 8 years of age”. The NHS says children with NF1 should have eye checks every year (adults every 2 years).

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Neurofibromatosis (NF1 and NF2)

Work at Childhood Tumour Trust? Tell us the questions your helpline gets asked, or anything here that looks wrong: mackgrenfell@me.com